Gus’ Story

When Gus was just four days old, he was transferred from St. Mary’s Hospital to American Family Children’s Hospital. He was in very grave condition. Gus was born with Eagle Barrett Syndrome. His kidneys didn’t work, his lungs were underdeveloped, and he was very sick.

“The first doctor I remember that day was one of his neonatologists, Dr. McCauley,” says Gus’ mom, Kymm. “He was wonderful, as were all of the doctors we had the pleasure of knowing during our stay.”

Gus started on dialysis when he was 20 days old, and he improved very quickly. “We had the absolute best nurses,” says Kymm. She fondly remembers nurse Crystal, Gus’ primary night nurse, who made everyone feel at home. “After 10 days in this world, she arranged for me to hold Gus for the very first time- a moment I will never forget.”

Gus’ family noted that all of the nursing staff was amazing and took care of Gus as if he were their own. “They were there through the worst and the celebrated the best with us,” says Kymm.

Gus’ family also applauds their amazing nephrology team. “Dr Redpath, and the entire team, are knowledgeable, kind, honest and have made this last year easier than I thought it would be,” says Kymm. “We have met so many great doctors from endocrinology to urology, and we have been blessed with the best. I could never thank each of them enough for saving our son’s life, and for continuing to do everything to help him thrive.”

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